Anri Surmanidze
2 years 2 months
Summ 213,062.29₽
Собрали на Zolgensma

Специалисты дают благоприятные прогнозы при должном лечении и реабилитации. Помочь малышу может всего один укол препарата «Золгенсма», средства на который необходимо собрать как можно скорее.

Anri was born on July 6th, 2020. His parents could not be happier. A month later they have noted that Anri was not as active as before, had difficulty breathing. So he was hospitalised urgently. Anri has been given the antibiotics, but without any success to improve his condition. His mother has noted a particular weakness of his hands and legs and that was the time when Anri was pre-diagnosed with SMA Type 1. The neurologist of the hospital where they were has referred them to run the genetic tests. On September 1st Anri was hospitalised and from September 2nd he was in the intensive care for 8 long months. The child was on the artificial lung ventilation and has started Spinraza. Thanks to a good care and therapy carried by his mom, Anri has started moving, gradually breathing autonomously.

After the hospital Anri was on a rehabilitation at “The Lighting House”. In Moscow his throat was examined and operated for laryngeal stenosis. At the moment he is recovering and later the decision to move him to the autonomous breathing will be evaluated.

At the moment the baby is breathing autonomously for 12 hours a day, move his hands, a little with his legs and head. The specialists give some good prognosis if cured and undergoing the rehabilitation. Only one shot of Zolgensma can save Anri and the fundraiser should complete as soon as possible.

Together we can help Anri to win his illness. You can donate in any way suitable for you on Anri’s page with the Fund.

Thank you for helping Anri!

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3 года 9 месяцев
Vadim Sorokin

На данный момент Вадим получил 4 загрузочные дозы препарата “Спинраза”. Однако, данный препарат является лишь поддерживающей терапией, но для того, чтобы остановить заболевание, Вадику необходим всего 1 укол препарата «Золгенсма», но его стоимость непосильна для простой семьи.

Диагноз: Спинальная мышечная атрофия (СМА) 2 типа
Необходимо: Zolgensma
Место жительства: