At the moment he has received 4 loading doses of this drug, but being only the supporting therapy Vadim needs Zolgensma, one-shot genetic therapy drug to stop SMA and its costs is beyond the possibilities of his family.
At the moment the baby is breathing autonomously for 12 hours a day, move his hands, a little with his legs and head. The specialists give some good prognosis if cured and undergoing the rehabilitation. Only one shot of Zolgensma can save Anri and the fundraiser should complete as soon as possible.
You helped them!
Ilya is three and a half years old, he is happy and smiling, like any other child. But due to his illness and without due cure he will stay handicap.